PKU is a treatable disease. Treatment involves a diet that is very low in phenylalanine, particularly when the child is growing. The diet must be strictly followed. This requires close supervision by a registered dietitian or doctor, and cooperation of the parent and child. if a parent does not moniter a PKU child's eating habbits that child could be taken away from the parents, because it is considered Child abuse. Those who continue the diet into adulthood have better physical and mental health., although there is no one on record to prove if this is true.
“Diet for life” has become the standard recommended by most experts. This is especially important before conception and throughout pregnancy. Any PKU child that does become pregnant has not automatically deemed there child to have PKU, how ever there is a very good chance of the child carrying a PKU Child but there was one PKU child who had a baby at 15. And her daughter came out fine. Simply by following a very strict PKU diet.
That has to be so hard for a kid to have such a strict diet. They always want junk food and they can't have it. I hope that the parents of kids with this disease are good about watching their diet.
ReplyDeleteactually the kids with PKU never get to have candy or chips ... so they really don't know what they are missing... the worst part is growing up and being different not be able to junk food like normal kids and not understanding why
ReplyDeleteThat's good that this is treatable.
ReplyDeleteThat would be hard to have such a strict diet .
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